Tag Archives: caudal epidural

Don’t Be Such a Pain in the Butt

Or needle in the spine – whatever – either way it hurts!  So the second caudal epidural was two weeks ago today.  I did get some pain relief from this one – just not as much as the first injection.  Also, it seems that the injection site right above my tail bone hurt for a much longer time.  Maybe it was because the two injections were so close to one another…. who knows – I only play a doctor on tv.

I went to see my neurologist who was a bit disappointed that I did not get more pain relief – as was I – especially for the $200 co-pay.  He took the time, sat and listened to how my pain effects my life and the triggers that bring it on.  When I told he about my current employment status he seemed to think this may help narrow down some of symptoms.  Maybe even get more relief since I am not stressed out and able to lay down when needed.  We shall see about that….

I got one of the meds doubled to see if that helps more and I am on my own for three months!  He made sure to tell me I can always call – but we are both hopeful things are going to be better – FINALLY!  It still hurts but it isn’t as bad – and I will take what I can get!  Endometrisos is still a monkey on my back – but at least he is not as big and and a bit cuter now!

Pieces of Me

Today marks the one year anniversary of my hysterectomy.  I am not sure how I feel about it really.  It was just a day that I lost pieces of me.  They may have been organs that were becoming dead tissue but they were still part of me.  I am lucky that my “girlie bit” organs were the only organs I lost that day.  The endometriosis had started to more to my kidneys and was all the way down covering my entire pelvic floor.

Besides the organs and other tissues they have removed from me in the last 1-1/2 years, I have realized that I have lost other pieces of me along the way.

I have lost the ability to really concentrate on knitting and have only completed a handful or projects.

I have lost my desire to get lost in a book, mainly because I am so tired by the time I pick one up that I fall asleep.

I have lost the ability to visit my parents, only 3 hours away, because I can not sit in a car that long.

I have lost the time going and doing and seeing with my husband because the pain was too intense.

I have most certainly lost friends because I can not go and “hang out” like I used to and they stopped calling to see how I was.

And sadly, I have lost real pieces of me – my personality – myself.

I am finally beginning to realize that I may not ever be without pain.  It is hard to understand, accept and move on with life but that is what I am doing.

I have been through two (not so fun & expensive) caudal epidurals.  They seem to help knock the pain down.  I will take what I can get.

I just finished a knitting project – the first in months!  I have also signed up for a knitting class that starts this weekend.  I am really excited and looking forward to it.

I got a bike that I have gone on short bike rides with my husband. It is nice to be outside pedalling around like kids in the graveyard near our house.

I have not yet been to see my parents – but I am hoping to for the holidays *fingers crossed*

I have found the friends that are truly caring.  They have been the ones that have checked and visited and called – and that is worth so much to me.

I am beginning to learn more about the person I am becoming from all of this.  I have certainly been changed by all of this.

I may have lost so many pieces of me but I thinking I am starting to take some of the pieces back – and put together  and beginning to see my puzzle of me.

Three for Thursdays! 09.08.11

It’s Three for Thursday time! I missed last Thursday because I was so nervous about by epidural! So I thought I would highlight the happy since that procedure.

#1 – I spent the day after the procedure knitting – SITTING and knitting – for hours! Not only was I sitting upright without massive, constant pain but I could actually concentrate on knitting, it was wonderful! I am actually optimistic enough to sign up for a knitting class at the end of the month.

#2 – Out of 3 work days, I have had 2 very good, low pain days at the office. The is just amazing to me! I am hoping for this to be a continual trend.

#3 – Since the epidural, I have not once had watery eyes due to pain. Instead, I have had several occasions of leaky eyes due to realizing that I am NOT in agonizing pain.

I am happy, thankful and most importantly – hopeful. So happy to have some hope for a change… I am just about ready to kick up my heals, just about…

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Must. Be. Hopeful.

Caudal Epidural +4

Struggling with remaining hopeful. Today was the first day back to work. By the time I left the office after about 10 hours at the desk I was hurting, a lot. I came home and got horizontal for a bit and it really helped the pain ease to a point to tolerable.

While I have not been pain free this weekend, I have been much more comfortable without having to concentrate on ‘not hurting’. It’s disheartening really…

But I will not dwell on that or the pain (damn it). Tomorrow is a new day. Look to the bright side blah, blah, blah.

I will rest tonight and feel better in the morning. I have to – I have no choice left. AND it can take up to 2 weeks for the steroids to work. They will work. They have to work (damn it).

I still have a little can can left in me…

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Cautiously Optimistic

Caudal Epidural +3

I remain cautiously optimistic. I am trying to not get ahead of myself. These first few days have been a dream. I did not think it possible for me to do the things I have done the last two days.

I know that I will have to have more laparoscopies remove any new lesions and such – but the relief is amazing! I know that this relief may not last… But I will take what I can get! I keep crying at the oddest times because I will realize I am not fighting pain. I am going out and doing!

I haven’t been jumping out of planes or diving with great whites. I have been doing things I loved to do in the past before my endometriosis became debilitating. While they may be things you would think I could do while I “rest” from the pain, but what most don’t realize is that pain does not allow you to concentrate. The pain becomes too distracting to do anything you actively have to pay attention to.

I have watched movies, I have been knitting, I have been sitting for hours, I have been walking through large stores, I have drunk beer made from a 130 thousand year old glacier, I have stood during a speech, I have mad dinner (Chicken Pad Thai) – I have been alive!

All without excruciating pain.

If my future holds more needles in my spine, having my bare fanny hanging out for all to see and butt crack band aids – bring it on! I will take anything to help me fight! I may not have a crystal ball but my future finally seems hopeful!

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